Busting Myths About Autistic Girls and Women, One Unicorn at a Time
We Unicorns seldom have a chance to gather in the magical wild lands of Manhattan, but thanks to a press pass arranged by Sharon daVanport, president of Autism Women's Network, I got to meet another of my species at a panel entitled Autistic and Female: They say That's Rare and so Many Other Things at the Disability Studies in Education conference at Hunter College, on May 27.
With a generous dollop of whimsy that autistic people are alleged to lack, Dr. Grace, an assistant Professor with the Diversity in Learning and Teaching Department and research methodologist at Louis University in Chicago, used her unicorn analogy to expose the myth behind the assumption that females with autism are rare. In fact, Dr. Grace maintains, autistic girls and women like her, and like me, are everywhere, but vastly under-identified and under-served. In a critique of theories, like Dr. Simon Baron-Cohen's suggesting "extreme male minds" and lack of empathy in autism, she noted both logistical and political underpinnings of the assumption of our rarity. She included in her overview of these theories comments on gender, class, race, and other biases that can block autistic girls and women from being recognized and accessing what they need.
It was in these comments that Dr. Grace's true unicorn nature began to shine through. She is rare, not so much as an autistic woman, or as a female scientist, but as a female autistic research methodologist, who undoubtedly has a unique perspective on the methodology behind the research of such widely discussed theories. Dr. Grace and her colleagues from Louis University, Dr. Linnea Rademaker and PhD candidate Jason C. Osmolak, were thoughtful and generous in their interaction with the audience about topics ranging from empowering parents to challenge educational norms to the importance of co-research in building trust between autistics and scientists studying our experiences. But oh, for a bit of unicorn or other magic to stop time and discuss at length Dr. Grace's unique view of how Dr. Baron-Cohen's information-gathering techniques may or may not have informed his findings!
Sometime soon, I hope Ibby Grace and I will meet again and chat over tea and cookies about that subject to our hearts content. You know, just standard girl-talk, one unicorn to another.
About the Autor: Carol Greenburg is the East Coast Director for the Autism Women's Network. Carol is Executive Director of New York Special Needs Consulting, is a special education consultant and professional non-attorney advocate in private practice serving the five boroughs of NYC and beyond. Her unique perspective as an adult with Aspergers Syndrome, and as the mother of a severely language-delayed autistic child, informs all of her work. She is also one of the editors at The Thinking Persons Guide to Autism. A prolific writer of essays on autism and frequent speaker at National Conferences, area universities, parent support groups and community based organizations, she is a member in good standing of Council of Parents Attorneys and Advocates (COPAA).
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- autism
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- autistic
- autistic girls and women
- carol greenburg
- disabilities
- Disability Studies in Education conference at Hunter College
- Ibby Anderson-Grace
- women and disability



Comments
Carol Greenburg, I can't wait! You're on for tea and cookies next time you're in Chicago or I'm in New York! Thanks for the lovely article!
Ib
What a wonderful thing to read about -- a female scientist studying autims who is autistic! Imagine that! I have grown so tired of reading about "autism research" conducted by NTs. We know that the viewer of object changes the outcome of the viewing via the act of viewing, so when an NT is "studying" me and my kind with all their assumptions, I wonder how we can take much of what they "find" seriously.
I am sorry that the medical model gives out laelbs' because they tend to stick like supa glue! I was very privileged to be the recipient of the love and welcoming that came from Nicholas. What a beautiful being of light he is! The first person to greet me at Heartland was Nicholas and he was such a gracious being, I loved him instantly. Autism is called a disability. I have worked in the Disability field for several years and I always used to ask: Who are the ones with the disability? And the answer is: Those of us that think we are so called normal' we have the disability because we put the laelbs on those who don't fit into the box' called normal'. You know what our disability is: BLINDNESS ! We do not see the truth and the truth is we are all the same, we are nothing but LOVE AND LIGHT in our essence, therefore there is no difference between any of us, after all we are ONE in essence. What we see out there is simply the judgements of our own minds! We see what we project onto the screen of life.So to me Nicholas was the joyful reminder of one who is without a disability because he presented himself as so pure and simply innocent. Yes, Nicholas is a blessing to behold!Thanks for shining your light on me Nicholas, you are beautiful!Luv Eileen
That is a real relief to hear about. Thanks for sharing this. I tried till I was exhausted and gave up to make a dent in this idiotic assumption. I have very intellgent friends who buy it hook line and sinker, while talking TO ME. The capacity for so many "Neurotypicals" to buy BS is frightening, and they will only change their minds if someone they deem to be an authority tells them to. And since NT's live in hierarchies, they are the ones who seek the power positions. I am quite sure now that Autistic people are not the ones with the bigger disability. That's not meant as a dig, that's really what I've discovered.
Thanks again for your blog!
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