parenting

The Gift of Self-Knowledge

Written by Jean Winegardner

I was an autism mom before I was autistic. 

I mean, obviously that can’t actually be true, because I’ve been autistic my whole life, but I came into the autism community as a parent years before I knew I was autistic. My introduction to autism was as a mom to my young son Jack back when he was turning three. 

It didn’t take me long to suspect that I was autistic as well, but it did take me a long time to claim autism as an identity. 

At first, this was just because I was spending all my time taking care of Jack and his brothers. I was learning how to navigate therapies and decide what was important. I was learning how to advocate for my son to get him the services he needed in the school system. I was also dipping my toes into the online autism world, reading blogs of parents and autistic adults and seeing myself in both places. 


Posted in:

on January 29, 2013 at 8:24am


Sleep Issues--How Do You Cope?

(Cross posting)

Hello!

I'm new to the forum and have a question about sleeping.  My 5 yo daughter (PDD-NOS) has gone through these cycles of not sleeping at night.... rather, she's never really slept more than 5-6 hours (rare) but lately she's not able to fall back asleep and is keeping everyone in the house awake in the process.  Her chatting to herself has become louder, too (delayed echolalia).

I have been giving her melotonin (3-5 mg per night) and it helps her fall asleep initially but not after she wakes up in the middle of the night.  Our ped suggested Benadryl (10 ml) but it seems to not really work more than giving her 3-4 hours of sleep.

She does have a weighted blanket (which she really likes and uses initially) but ends up kicking it off of her... maybe this is why she is waking up?  She also was given a trampoline for Christmas and jumps all day long. Plus, we use salt baths every night before bedtime.


Tags:

New member needing help.

My youngest step-daughter is 13 and has autism and an intellectual disability. She communicates fairly well but still struggles on a regular basis with personal hygiene and it is becoming an increasing concern for us.

She started her period last year and we've done what we could to prepare her for it. The first couple of months, she did well to tell me when she needed pads but she now isn't telling us and has ruined a lot of clothes because she isn't using a pad.

Has anyone else experienced issues of this sort? What would be a good place to start with her in getting her to remember to communicate her needs for period supplies?

 

Thanks in advance.


Tags:

On Gratitude

For New Autism Parents
Written by ©Shannon Des Roches Rosa

My son Leo has passed the eleven and a half years mark. I feel like I'm finally hitting my stride as an autism parent, in terms of accepting Leo on his own terms, and not giving a damn about the imaginary "easier" alternate reality society thinks I'm supposed to pine after. This means I think a lot about the information and attitudes I'd have wanted to jack, Neuromancer-style, straight into my brain eight years ago so I could instantly be the parent Leo needed me to be.


Posted in:

on August 6, 2012 at 12:52pm


The Importance of School Choice

Written by Shannon Bonnette

I always feel the need to add a disclaimer when writing about why I chose to homeschool and why I think it is better for my family. I do believe that public school is better for some children/families, and I want to be very, very clear that I do not think less of a parent who chooses to send a child to a brick-and-mortar school. That said...

With the start of the school year approaching, this is the first year since my children were born that I have known exactly what I was going to do and felt completely confident in that decision.


Posted in:

on July 31, 2012 at 5:47pm


Webinar Survey: Parenting Daughters on the Autism Spectrum

Autism Women's Network has begun doing webinars, and we'd like to know what you want! 

We are putting together three interest surveys: one each for (1) autistic parents who are parenting autistic daughters, neurotypical parents and caregivers parenting daughters with autism (2) autistic women (3) and the professionals that work with us in order to figure out what the community needs, and where their interests are focused. 

(*) This is the first survey in the series.

We value your input and appreciate you taking the time to share your opinions and suggestions with us. Please follow the link to take the brief 10 question survey. Thank you! 

Date: 
Saturday, April 14, 2012 - 1:00am EDT - Saturday, July 14, 2012 - 1:00am EDT

Webinar Survey: Autistic Parents Parenting Autistic Daughters & NT Parents/Caregivers Parenting Daughters with Autism

Autism Women's Network has begun doing webinars, and we'd like to know what you want!


We are putting together three interest surveys: one each for (1) autistic parents who are parenting autistic daughters, neurotypical parents and caregivers parenting daughters with autism (2) autistic women (3) and the professionals that work with us in order to figure out what the community needs, and where their interests are focused.  

(*) This is the first survey in the series. 

We value your input and appreciate you taking the time to share your opinions and suggestions with us. Please follow the link to take the brief 10 question survey. Thank you! http://bit.ly/IKoO4r


Posted in:

on April 14, 2012 at 3:42pm


Autistic, Parenting, Homeschooling and Acceptance

Written by Mara Fritts

Mara Fritts is the mother of four, she is diagnosed AS, and she sits on the AWN Board of Directors.

I started Homeschooling when our oldest son was 7 years old, after fighting a school system that would not listen to my pleas that there was something different about him. I saw it. Why didn't they? Why did they say that our son was normal when his teacher said there was something different with him? I saw him as being alone and not understanding why he was having issues at school. Why didn't all the children throw gravel at other students when they were frustrated ? 

When our son was 5 years old, he started Kindergarten in a private school. They said that he was too immature, so they put him into the preschool. Our psychologist at the time said our son has Attention Deficit and Hyperactive Disorder (ADHD) and that he needed additional observations. We were told the public school would also do testing on him, so we sent him. 

From the beginning, we had issues with getting the school to observe our son. They were supposed to look at him at the beginning of the school year. After several months of not hearing anything and many phone calls, they finally had the Occupational Therapist (OT) and the school psychologist look at him. They said that everything was normal. His homeroom teacher, who was a former resource teacher, disagreed with this. She helped us place him in a behavioral program from the local university. It was the only help she could offer. It was based on rewards, but he wasn't really interested in earning anything. Over that summer, our son went to a private OT to help with the hand weakness and balance issues that his pediatrician diagnosed him with. The balance issues were something else that the school missed.


Posted in:

on April 2, 2012 at 1:52pm


Witnessed Child Abuse on Public Transport...

I'd like thoughts from anyone who'd like to offer them:

I was on a crowded bus last week.  A woman nearby with a small child began harshly scolding the child, and finally snarled at the child, "I'm gonna punch you in your face" right before she did just that.  The woman then became belligerent at a couple of passengers nearby who dared to speak up--"Go ahead.  Call the cops."  I didn't have a cell phone with me, but even if I had and if I'd called 911, I doubt that anyone could have tracked down this woman and child.  I got off the bus shortly after the verbal abuse she gave to the other passengers. 

I was furious with myself for being so helpless.  But I saw how much good it did for people to speak up.  In fact, it occurred to me that confronting this woman might cause her to take out her fury on her child again later on.  I'll never forget the look on the face of the child (about three years old), the striken look of betrayal and hurt at the mother.  I've been haunted by this incident.


Tags:

Which states are best for autism services?

We want to move because we don't feel like our current state is a good enviornment for our autistic child. We are considering Indiana because they seem to have services that fit our needs. We also have heard that they have autism indiana. We don't know a lot about it, so if someone can offer more information that would be great. What states do you think are good for autism services?


Tags:

Syndicate content

Tags